The Matthews Story
Moving through Neuroblastoma, Premature Birth, and Loss
Monthly Archives: October 2010
← Older posts[VIDEO] A Prayer from Ezra
October 28, 2010This video was taken a week or two before we came to Orlando. Watch it at Vimeo.com if you prefer. And one with his babysitter Abby just for kicks since you’re here. Watch it at Vimeo.com if you prefer. (I’m … Continue reading
Posted in Video | 33 Comments | Share(we have two kids)
October 28, 2010So… hey… where’s Charley been all this time we’re stuck in grating limbo in Orlando? Well – that’s a story you’d be impressed to hear. So I’ll tell it. We’ve been in Orlando 3 weeks (well, we were home ONE … Continue reading
Posted in General | 30 Comments | Sharemilne
October 26, 2010Sorry for the lack of updates – I woke up this morning to a couple dozen messages from various avenues essentially saying “what is going on?!?!?! no updates??!?! how is Ezra?!?!?!?! fool of a Took!?!?!?!” I haven’t posted anything these past few … Continue reading
Posted in General | 107 Comments | Shareto clarify stable
October 23, 2010Things today are much the same – we were able to get Ezra to take some of the Nifurtimox this morning by dripping it into his mouth with a syringe. Last night we tried to get him to take some … Continue reading
Posted in General | 79 Comments | Shareblues clues
October 23, 2010Thank you to Kerri and Jennifer who sent this Blues Clues beanie. I’m pretty sure it is supposed to be for Ezra… but Robyn is involving herself in thievery today it seems.
Posted in Pictures | 6 Comments | ShareNifurtimox
October 22, 2010Well, we just signed the papers to dispense the Nifurtimox to Ezra, and he’ll be getting his first dose this evening. Whew – that was a long battle involving chatting with dozens of countries, doctors, FDA, research coordinators, and Bayer, … Continue reading
Posted in General | 38 Comments | Sharesome pics of the family
October 22, 201010 days ago, Ezra was still a crazy little running around playing boy, and Melissa from Contemporary Captures (she knows us through HopeForGodsChildren) came out and took a bunch of photos of us. They came out great, and I’d like … Continue reading
Posted in Pictures | 14 Comments | Sharehanging in there
October 22, 2010Ezra is more stable now than he was earlier in the week, but we’re still not sure what that really means. His oxygen has remained at the same level for a few days now, and earlier in the week it … Continue reading
Posted in General | 40 Comments | Share[VIDEO] The Ezra Matthews Story
October 21, 2010I wanted to share a video with you all of Ezra’s story in brief so far. The Ezra Matthews Story summary video was shot and edited by a friend who’s family by now, AJ Hurley. We’re grateful for the memories.
Posted in Video | 90 Comments | Share
