Moving through Neuroblastoma, Premature Birth, and Loss
It’s 2011. A new year. This past month Robyn, Charley and I have been getting some rest and doing our best to enjoy the holidays. It’s been difficult, but we’re surrounded by a large group of loving family and friends … Continue reading
Posted in General | 27 Comments | ShareWe are hard at work gearing up for 2011 and launching into our new foundation. We have been chatting with lawyers, doctors, and supporters every day recently, and are really excited about the buzz over Because of Ezra. We just … Continue reading
Posted in General | 30 Comments | ShareToday is day 817 – our first Thanksgiving without Ezra. We are thankful for so many things. For 800 days of being given the incredible gift of caring for a beautiful and unforgettable son who has changed our lives forever, … Continue reading
Posted in General | 45 Comments | ShareHey folks. Here’s the celebration of life service video. It was a good 50 minutes long, so make sure you’ve got some time to sit and watch if you plan to. Again, thank you to everyone who came. We have … Continue reading
Posted in Video | 65 Comments | ShareYesterday’s service was a moment Robyn and I will never forget. I walked into the sanctuary and saw a wall of balloons 20 feet high and 80 feet wide… with dozens of huge flower arrangements… a slideshow of Ezra playing… … Continue reading
Posted in General | 63 Comments | ShareA day has passed since Ezra died. Thank you so much to everyone who has sent their love to us. I wrote the post yesterday about Ezra’s passing, and we went straight to sleep. By the time I woke up … Continue reading
Posted in General | 78 Comments | ShareEzra died this morning. I never wound up going on that bike ride – Robyn called me Saturday night saying Ezra was getting worse to the point the doctors and she thought I should be there. I drove back to … Continue reading
Posted in General | 381 Comments | ShareI’m back in Tampa today since I’m doing the Cure on Wheels 100 mile bicycle ride tomorrow morning. (You can still donate to that if you want, although it doesn’t go to Neuroblastoma specifically – proceeds support our local children’s … Continue reading
Posted in General | 22 Comments | ShareAlright – so I left you in a moment of peril with us there a few hours ago. Dire straits. Since then a lot of good things happened. Thank you (seriously – thank you) for praying. The CT came back … Continue reading
Posted in General | 108 Comments | ShareSo as I mentioned last night, Ezra’s heart rate has been up and his breathing has also been very rapid. We were thinking this was from the fluid in the lung (an xray was taken on the 18th which showed … Continue reading
Posted in General | 69 Comments | Share