Moving through Neuroblastoma, Premature Birth, and Loss
Charley. I wonder sometimes how he’ll feel knowing he lost two brothers without ever really getting to know them. Charley is 20 months now – he’ll be two in March. He’s come a long way, and takes his time getting … Continue reading
Posted in General | 10 Comments | Share(I meant to write this on the 1 year anniversary of Ezra’s death – November 8 – but couldn’t quite do it. I’ve taken the small liberty of pretending I still did write it that day. ) One year ago … Continue reading
Posted in General, Video | 13 Comments | Sharewritten for an old man, but brought me memories only of Ezra Do not go gentle into that good night, Old age should burn and rage at close of day; Rage, rage against the dying of the light. Though wise … Continue reading
Posted in General | 6 Comments | ShareI had wanted to post this on Ezra’s birthday, but I didn’t get around to it. This past Wednesday, Ezra would have been 3. We miss him every day. I miss him every day.
Posted in General, Pictures, Video | 9 Comments | ShareI often find myself unfound. Sometimes it’s while I’m driving, and I suddenly realize I’m not focused on anything, not hearing or seeing what’s in front of me. Sometimes I’m sitting on our back deck, with a book in my … Continue reading
Posted in General | 12 Comments | ShareWhen you meet someone, there are two and a half common questions you ask. “What do you do?” and “Married? Kids?” These are common questions which we ask because they’re “safe.” Questions which give us a quick, mile-high overview of … Continue reading
Posted in General | 10 Comments | ShareIt’s Friday, and it’s noon as I start this blog. People often ask how we’re doing… I figured I’d write something up. This update will mark the end of me using CarePages for updates – CarePages is for patients, and we … Continue reading
Posted in General | 38 Comments | ShareIt’s 2011. A new year. This past month Robyn, Charley and I have been getting some rest and doing our best to enjoy the holidays. It’s been difficult, but we’re surrounded by a large group of loving family and friends … Continue reading
Posted in General | 27 Comments | ShareWe are hard at work gearing up for 2011 and launching into our new foundation. We have been chatting with lawyers, doctors, and supporters every day recently, and are really excited about the buzz over Because of Ezra. We just … Continue reading
Posted in General | 30 Comments | ShareToday is day 817 – our first Thanksgiving without Ezra. We are thankful for so many things. For 800 days of being given the incredible gift of caring for a beautiful and unforgettable son who has changed our lives forever, … Continue reading
Posted in General | 45 Comments | Share