The Matthews Story

Moving through Neuroblastoma, Premature Birth, and Loss

Category Archives: General

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thankful

Posted on November 25, 2010 by Kyle Matthews

Today is day 817 – our first Thanksgiving without Ezra. We are thankful for so many things. For 800 days of being given the incredible gift of caring for a beautiful and unforgettable son who has changed our lives forever, … Continue reading →

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interim

Posted on November 14, 2010 by Kyle Matthews

Yesterday’s service was a moment Robyn and I will never forget. I walked into the sanctuary and saw a wall of balloons 20 feet high and 80 feet wide… with dozens of huge flower arrangements… a slideshow of Ezra playing… … Continue reading →

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celebration of life

Posted on November 9, 2010 by Kyle Matthews

A day has passed since Ezra died. Thank you so much to everyone who has sent their love to us. I wrote the post yesterday about Ezra’s passing, and we went straight to sleep. By the time I woke up … Continue reading →

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Ezra David Matthews

Posted on November 8, 2010 by Kyle Matthews

Ezra died this morning. I never wound up going on that bike ride – Robyn called me Saturday night saying Ezra was getting worse to the point the doctors and she thought I should be there. I drove back to … Continue reading →

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i want to ride my bicycle; i want to ride my bike

Posted on November 6, 2010 by Kyle Matthews

I’m back in Tampa today since I’m doing the Cure on Wheels 100 mile bicycle ride tomorrow morning. (You can still donate to that if you want, although it doesn’t go to Neuroblastoma specifically – proceeds support our local children’s … Continue reading →

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ok so that was fluid

Posted on November 2, 2010 by Kyle Matthews

Alright – so I left you in a moment of peril with us there a few hours ago. Dire straits. Since then a lot of good things happened. Thank you (seriously – thank you) for praying. The CT came back … Continue reading →

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what now?

Posted on November 2, 2010 by Kyle Matthews

So as I mentioned last night, Ezra’s heart rate has been up and his breathing has also been very rapid. We were thinking this was from the fluid in the lung (an xray was taken on the 18th which showed … Continue reading →

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happy november to you

Posted on November 1, 2010 by Kyle Matthews

We had a fairly uneventful Halloween here. Well, Robyn and Ezra did I should say. Like a chump husband, I had to be in Denver on business so I was gone all day Saturday and Sunday. And thanks for asking, … Continue reading →

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(we have two kids)

Posted on October 28, 2010 by Kyle Matthews

So… hey… where’s Charley been all this time we’re stuck in grating limbo in Orlando? Well – that’s a story you’d be impressed to hear. So I’ll tell it. We’ve been in Orlando 3 weeks (well, we were home ONE … Continue reading →

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milne

Posted on October 26, 2010 by Kyle Matthews

Sorry for the lack of updates – I woke up this morning to a couple dozen messages from various avenues essentially saying “what is going on?!?!?! no updates??!?! how is Ezra?!?!?!?! fool of a Took!?!?!?!” I haven’t posted anything these past few … Continue reading →

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