This morning has been another barrage of emotion.
Ezra still hasn’t eaten since Friday, and has barely drank anything. When he does drink, he can only take a sip or two before coughing and not being able to take more in. He is on fluids so at least he’s hydrated, but these are bad signs. He hasn’t gone to the bathroom in over 12 hours, even though he’s had quite a lot of fluids being given – usually he’ll have a wet diaper every couple hours. His liver is still inflamed, and the drs say him not having any wet diapers is 99% caused by his kidney now slowly shutting down. His breathing is more rapid than last night – and last night it was very high. This is because his lung has fluid in it (at least the right lung we know for a fact), and the space under the lungs is also filling with fluids as the tumors are blocking areas the body would normally get rid of fluid. The tumor on his eye has grown downward to be under his cheek as well.
His platelets are not holding – he gets them and very shortly after they’re already gone. Because of this, they can’t do any operations, as the risk of bleeding is through the roof. He’s breathing so fast that eventually he will tire out and not be able to breathe that much, but we can’t intubate him (put a tube in his throat to breathe for him) because any nicks along his throat while intubated with his platelets not holding at all would mean he would bleed internally. This risk is extremely high. When Charley was intubated, that happened as well (but his platelets were fine so it wasn’t a huge issue).
We got results back on the MIBG scans from Thursday, and the Neuroblastoma has spread to nearly every area of his body. His arms, legs, chest, lungs, head, and neck are all showing large amount of activity – much more than he has ever had, and much quicker. Remember, we had MIBG scans the week before as well, and the growth since THOSE scans is quite a bit. We also got results back on his bone marrow biopsy from Monday morning, and his marrow is showing a large amount of cancer, much more than before. Because of the complex situation of everything shutting down in Ezra and the extremely rapid progression of the cancer, the drs don’t feel the chemo can be continued – his body can’t physically take it. We’d be poisoning him even faster than the cancer alone is.
What I’m trying to say is… Ezra is dying.
Neuroblastoma is a very aggressive cancer. It is relatively rare, but is the most common cancer in infants. Only 650 cases a year are seen in the US (compare that to nearly 200,000 annually for breast cancer and over 40,000 a year for leukemia). It is not well-funded or researched, although the past decade has seen a lot more focus on it. This won’t keep happening forever. Doctors and researchers learn from every child who gets this cancer, and the things learned in the past decade alone have been incredibly promising. We hope and pray for a cure or a more structured treatment regimen to be developed soon to have this not happen to other families and children. Not even counting our and your hurt and sense of unfairness – this isn’t fair to Ezra. This isn’t what a 2 year old should be doing. We love him so much.
At the moment, Robyn is sitting in a chair holding Ezra while he rests. They’re beautiful.
Kyle, thank you so much for sharing your journey with us. Hold on to your boys, your wife and your God. Join with the writers of Psalm 42 today. . . putting your Hope in God. Love you.
Our prayers are with Ezra and the Matthews Family.
http://www.youtube.com/watch?v=q2ytfAWZx1k
I am so very sorry to hear the latest developments about your beautiful and precious Ezra. No, this is not what a 2 year old should have to go through and neither should you, his parents. My heart aches for you, and I pray that the Lord will heal him even at this time. If it is not His will, I pray that he doesn’t suffer. I pray that the Lord will completely surround each one of you with His everloving presence and give you the peace that only HE can give. I am praying for you all. In His grace,
Jan
I pray the PEACE of GOD surround you all! And the comforting touch of the Holy Spirit would ease any pain little Ezra may be experiencing! I read this and tears just come instantly, thinking of what this may be like… I am continuing to Pray for you all! And, what a sweet picture of mama holding onto her baby, i can only imagine. My heart is SO with you all through this! God Bless each of you!
Ezra and everyone that have been touched by this beautiful child has been the only thing on my mind and prayers. I pray for a peace like no other and God’s perfect love surround your family and friends in this very difficult time.
Kyle, I work with your dad and he has shared your story with me. I can tell just from some of the posts I have read that you were blessed with your father’s strength. I have added you to my family’s prayer chain and my heart goes out to you, your family and your beautiful child, Ezra.
I’m sitting here at work, crying…trying to see the computer screen through the tears. My heart is breaking into a million pieces, as I can feel the immense love, hurt, confusion, pride…every emotion possible in this moment. I am praying so very hard for Ezra, you, your wife and family. I’m so sorry God has chosen this path for Ezra, and for your family, but I know his plan is a mighty one. Continued hugs and prayes are coming your way.
Praying. And will continue to.
sending so much love your way! Praying for God’s arms and love to fall on you heavier than ever before.
There are no words. I am praying for peace for you and your family and for God to heal Ezra.
I too am sitting at work crying my heart out and begging God to return, bring us all home and end this pain that is absolutely unbearable. Kyle, I ache for you and your wife. It is not fair – I don’t understand it, I do question it and I don’t know how to deal with it. All I can do is pray and cry out to God for you all. I am so sorry. You are loved beyond measure even though you feel depleted and bruised. Oh God, please give this family strength and grace. Lord, we confidently ask for HEALING in Ezra’s life today!
Words are so inadequate! God, please hold this family tightly in Your arms. Wrap them in the peace that passes all human understanding. Strengthen their faith. God, I pray that You’d give them their miracle if that be Your will. If not, I pray that Your glory would shine through Ezra and You would take him peacefully. God my heart is broken and my face freshly stained with tears for a family I have never met. God, may You be more evident in their lives today than ever before! Amen.
I don’t know what to say, but I want you to know we are still with you. We love you guys. I know it hurts so much – it hurts us so much, but we love you, and we love Ezra, and we won’t stop – God is still faithful.
The Billos
Such heartbreak, so much love and faith. Prayers for you, for Robyn, and for sweet, sweet Ezra.
I dont even know what to say all that comes to mind is that our God is a great God. My heart goes out to you and your family. You are right, It is not fair for a 2 year old to be going through this. This is far to big for us to comprehend why children get stuck in these situations. I will keep your son and family in my prayers…
After talking to Robyn this morning I could hear the sadness in her voice but I did not want to even think the thought. I have been sitting here at your blog since 2am crying, begging God and praying! I beg as a selfish mother begs. That God would allow your precious son to stay here on Earth in his mother’s loving arms.That he would be Healed and never know the pain of this cancer ever again! Kyle & Robyn, our family aches for you and your entire family. It is not fair – and we cannot even begin to understand. All we can do is pray and cry out to God for you all. We will not give up HOPE and will continue to pray! Oh Father God, please give this family strength, hope, love, grace, and more preious time! Lord, we confidently ask for HEALING in Ezra’s life today and everyday here on Earth. Let this not be the time for him to meet you, Lord. Please bless him with more time on Earth with his Mother, Father and Baby Brother Charley! Amen!
Romans Chapter 8
18I consider that our present sufferings are not worth comparing with the glory that will be revealed in us. 19The creation waits in eager expectation for the sons of God to be revealed. 20For the creation was subjected to frustration, not by its own choice, but by the will of the one who subjected it, in hope 21that[i] the creation itself will be liberated from its bondage to decay and brought into the glorious freedom of the children of God.
22We know that the whole creation has been groaning as in the pains of childbirth right up to the present time. 23Not only so, but we ourselves, who have the first fruits of the Spirit, groan inwardly as we wait eagerly for our adoption as sons, the redemption of our bodies. 24For in this hope we were saved. But hope that is seen is no hope at all. Who hopes for what he already has? 25But if we hope for what we do not yet have, we wait for it patiently.
26In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. 27And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God’s will.
We are doing our best to weep with you, to pray with you, to cry out with you and your family. As best as we all know how to do, we do to demonstrate a love that none of us really fully understand but a love that we all participate in as dearly loved children.
One day Kyle, there will be no more sorrow, no more pain, no more tears, no more separation. I know that does not take away the hurt. I so wish it did. I am proud of the husband and father you are being to your family and I only hope I could have the strength manifested in my life given similar circumstances as what you have been able to find in Christ.
A brother in Christ from GFC,
gary barker
And should you need anything count me in the long line of faithful servants ready to go to work to minister to you and your family.
Keep crying out in honest and recklessness before the Lord and know we join you moment by moment.
My prayers are with you and my heart aches for you…
We love you Kyle. We love all of you. Be strong.
Continuing to pray for Ezra’s healing. We have the church praying as well.
praying for Ezra and family…the peace of the LORD’s will. May we understand
I have a brother who lives in Germany, that we were in contact with this morning at 5. hew works on base there and he will be getting in contact who ever he can. we called Frankfurt International pharmacy at Frankfurt Airport. They are listed online as a supplier of this drug. She spoke with them in detail about this drug as well as Lampit. They did not have it available only as an import from possibly sweden or south africa. However, they did give me a number to a munich pharmacy but I need a translator to call,we are waiting for our family to call us back. Our prayers are still with you and we are holding your hands tightly through all of this.
My mum and I started to read this together, and by the end of this post the both of us were sobbing.
We have never been very religious, but right now we are praying for the best for dear little Ezra. He has been so incredibly brave throughout this whole journey.
Dear Ones, I,too,have lost a little boy, and my heart joins with many others who are constantly calling your names before our Father’s throne. Please know that as He’s carrying you through this impossibly difficult journey, you are being uplifted in prayer that the LORD will surround and sustain you. Praying that you will be able to see God’s faithfulness and love during this time when you look back on all that you have been through. Through tears, I am praying that my son will wait with Jesus at Heaven’s gates to welcome Ezra.
Mere words are not enough. Our God is an awesome God … He sees the tears … feels the hurt … hears our petitions and prayers … and through it all, He LOVES His little Ezra more than we can possibly imagine.
Our prayers are with you.
The Beck Family
My heart is broken for you and your family. I am so, so sorry that you are having to suffer this. Prayers and thoughts are with you all. – Sarah
Your family is in our prayers. I can’t hold back my tears for all of you. May God give you amazing strength.
I am still praying for a miracle. I hope you take hundreds of photos of both of you holding Ezra in this time. Jeasus has a place for him if He so chooses to call him home. Every time you see Charley looking past you and smiling or laughing, it’s because his angel brothers are playing peek-a-boo with him from behind you. When you here him giggle from his room and wonder what he is laughing about, it is his brothers that have come to play with him. Though I so want a mracle of healing for him I also want peace and no more pain for him. I just pray that the Lord wrap your family in his arms, surrouond you with comfort and peace as you go through this. I am fsting and praying today. I will not stop. God bless you and your family and all you have been through let you find peace and comfort in the end knowing your boys are with our Heavenly Father. Away from harm, illness, disease,pain, and discomfort.
In times like these I hear the song “God Is God” by Steven Curtis Chapman playing in my mind. Here are the words…
And the pain falls like a curtain
On the things I once called certain
And I have to say the words I fear the most
I just don’t know
And the questions without answers
Come and paralyze the dancer
So I stand here on the stage afraid to move
Afraid to fall, oh, but fall I must
On this truth that my life has been formed from the dust
God is God and I am not
I can only see a part of the picture He’s painting
God is God and I am man
So I’ll never understand it all
For only God is God
And the sky begins to thunder
And I’m filled with awe and wonder
‘Til the only burning question that remains
Is who am I
Can I form a single mountain
Take the stars in hand and count them
Can I even take a breath without God giving it to me
He is first and last before all that has been
Beyond all that will pass
Oh, how great are the riches of His wisdom and knowledge
How unsearchable for to Him and through
Him and from Him are all things
So let us worship before the throne
Of the One who is worthy of worship alone
My thoughts and prayers are with you, your family and friends today and everyday!
found your story from a friend. Praying for you and your family and precious Ezra. Praying for healing and strength of his little body.
I am so terribly sorry to read what your family has, and is, enduring.
pat
You do not know me, but a friend of mine that attends your church posted your blog on her facebook page and asked for prayers for your family. I am sitting at my desk crying my eyes out because I have a son almost the same age as Ezra, and I can’t imagine going through all that your family has gone through. I don’t know what to say in a situation like this, but to hold strong to your faith. I always tell myself God has a plan, even if we don’t see the finish line right away, he has a purpose. I want to reach out and help your family in some way, but I’m not sure how. What can I do for you??? Praying for your family and sweet Ezra.
Our 4 year old first born son, Isaac was killed in a car accident a year after his baby sister was diagnosed with a brain malformation causing seizures. All your thoughts in “Faith and Doubt” and all you are expressing now is so similiar to our thoughts as believers. My husband and I have found healing and comfort through the very real hope of eternity…I have almost said countless times, what you said about whether we live 2 or 102..it is in the light of eternity. 100’s of years ago many families lost many children due to lack of antibiotics. It was so common. This thought helped me realize we were not alone. I have always been taught that God works through suffering and the example of JOb is great. One time I shared with a friend that I felt like a knife was always stuck in my side. That very week I read what Simeon said to Jesus’ mother..”a sword will pierce your soul” this helped me not feel so forsaken by our heavenly Father..If he allowed his most humble servant Mary to feel stricken then he must love me even though He has allowed such grief. You will be used so much through this and because of this. I have never heard of your family until today but HE has already touched me deeply through Ezra. Many tears have and are being shed for You…many are sharing your sorrows. You will feel God’s grace through this. Your two precious sons..it seems unbelievable. Years ago after our accident someone gave me a tape of a interview from Focus on the Family of a family who lost all six of their kids as there car exploded as they just simply drove over a piece of metal. Their Christian faith was real and astounding..I knew we served the same God..He loves you both so deeply. We live in a fallen cursed world..But…THY KINGDOM COME THY WILL BE DONE ON EARTH AS IT IS IN HEAVEN! ….we will see the restoration of all things ..I am so sorry and praying for only God’s comfort will come and It is very real.
Kori, AMEN. That was just beautiful and full of so many truths. It is about eternity and glorifying our Lord which is done best or maybe at it worst during our most difficult trials. Your family and Ezra’s family are wonderful examples of having it all in perspective and both families are glorifying and have glorified our heavenly Father. The wisdom of both families is evident that the Holy Spirit is indeed actively working in your lives! Thank you for being such a faithful witness to us here on this blog. You have blessed me today and given me renewed hope.
Sorry, I meant to address you Lori. I should have proof read my comment. Blessings
I am so sorry that you guys are goo g through this! Poor Baby Ezra and your whole family are in my prayers! Praying for comfort and strength!
When Joshua would go into battle, Moses was required to lift his arms toward heaven.Aaron and Hur were appointed to lift his arms when the weight was too heavy for Moses. They were never to be dropped. As the weight of this burden becomes so heavy, we are here for you to lift you up as Ezra still fights this battle. I will always have Ezra in my thoughts and prayers.(High SchoolFriend of Dave)
Kyle Robyn and boys,
My heart breaks for you. I don’t know the pain you must be experiencing right now, but I know God. I know that He is there holding you all, comforting that sweet baby boy and weeping with you. I am praying for a miracle still and trusting that God knows exactly what he is doing. Be blessed and comforted by the love of those here and more importantly by the love the Lord has for you and your children. You are so strong and courageous. Your faith and reliance on the Lord is a huge encouragement to everyone who knows you, meets you, or reads here.
In His Love,
Jamie
My heart aches for your family. I am so sorry you are facing this. We will never understand why some things happen. Why God gives and He takes away. Please know that you are not alone there are many of us who are praying for you and your family and your precious baby. I know there are really no words that can bring you comfort at a time like this. I pray that God holds you all close to His heart and comforts you during this difficult time.
In Christs love
Ann
Praying for Ezra and your entire family. Peace.
Praying here in Colorado.
I will be praying for peace that surpasses understanding. For only our God can give Peace like that. Remember our children are a gift from God. He will call them home when most will call it unfair. God will not give us anything that we can not handle. Only He will give you strentgh.. I pray for strength for your family.. And peace.
Hello Matthews Family,
I have been getting updates on your family from a friend of mine who knows you, and have been praying for God’s hand to be in the situation and surrounding your family. What a crazy life this is. Today, as I read your updates, my heart is breaking. I pray continually, and that you will know God’s amazing strength to continue to carry you through each moment of each day – all 4 of you.
Praying for you and your family Kyle.
I have to believe that while Ezra is sleeping God is preparing a way, they are talking and laughing and singing. I pray for you my brother and sister. I continually look at his pictures and see his beautiful face,, EZRA IS THE MIRACLE, it is so possible to love someone whom youve never met please kiss his forehead for me and sing him “you are my sunshine”.. God hears me ask for supernatural comfort and strength peace and guidance i love you all, love your sister in Christ
I truly cannot understand the order of the universe. Why does your beautiful baby have to suffer? Why do you? There are tears in my eyes and a lump in my throat while I stare at the screen- wishing there were adequate words. But there aren’t.
I’m so sorry. I’m so sorry. I’m so sorry. For what little it is worth.
We love you guys!
Praying for you and your family.
My heart is breaking for you. Please know that our family is lifting yours up now, praying that God will literally carry you through this devastating time.
kyle..words can not express the emotion i feel as i picture robyn holding her little ezra… i remember a saturday night not too long ago…you were singing your heart out for the Lord…
You’re God of this city, you’re the King of these people, you’re the Lord of this nation, you are…
You’re the Light in this darkness, you’re the Hope to the hopeless, you’re the Peace to the restless, you are…
For there is none like our God, there is none like You, God!
Greater things have yet to come, and greater things are still to be done in this city!
Greater things have yet to come, and greater things are still to be done here.
You’re the Lord of creation, The creator of all things you’re the King above all kings, you are…
You’re the Strength in the weakness, You are Love to the broken, You’re the Joy in the sadness, you are…
For there is none like our God, there is none like you, God!
YOU BOTH ARE such a strong example of hope, comfort, and love…praying that GREATER things can be done with the awful cancer that takes so many children’s lives!
praying without ceasing…april, daniel, zach, eva, jules, and gigi
My husband and I are praying for you, Robyn, and precious Ezra. May you feel God holding you close to Him and to each other.
I’ve taken care of your family at ACH and am so inspired by your strength. I only get so much of the picture in a nurse to nurse report and reading through your whole blog had me in tears because I was able to see more of the story than just lab values.
My heart aches for you and I really don’t know what to say, but I want you to know that your family is in the prayers of my family. And one thing that always stood out to me when I cared for Ezra, was how despite it all, you were all able to find reasons to smile during my 12 hour shift. That’s inspiring…it’s why I do what I do.
Prayers from Ft. Lauderdale
A friend of mine, Marty sent your story to me and asked me to join in prayer. I would like to pray with you.
Dear Heavenly Father,
Please hear us now as we cry out to you for mercy and healing. You told us to ask for anything in Your Son Jesus` name and it shall be granted according to Your will. We are asking Lord that You would grant the miracle of signs and wonders and supernaturally heal baby Ezra and allow this healing to be a testimony to Your existance and Your Power for the sake of the Gospel. We ask that many would be saved and come to know You through this healing ministry. We ask this in Your Son Jesus` most holy and precious name! We also ask for a measure of faith, patience, strength and love be given to Ezra’s parents to get through this as You have already. LORD and we thank You for all that You have done! We thank You for being You and for loving us when we didnt deserve it. Thank You for our salvation! All glory, honor and praise go to You KING JESUS! You’re will be done. In Jesus name amen!
“This salvation, which was first announced by the Lord, was confirmed to us by those who heard Him. God also testified to it by signs, wonders and various miracles, and gifts of the Holy Spirit distributed according to His will.”
Hebrew 2:3-4
“Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened.
“Which of you, if his son asks for bread, will give him a stone? Or if he asks for a fish, will give him a snake? If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him! So in everything, do to others what you would have them do to you, for this sums up the Law and the Prophets.
Matthew 7:7-12
Praying for you all at this very difficult time. Thanks for sharing your story and your precious little Ezra.
I found your site through Layla Grace’s foundation. I wept and prayed with her family, pleading to the Lord for her little life, and I am doing the same for Ezra. And if that is not in His plan, then I will pray for unceasing peace for you and your wife. You are not alone.
I don’t know what to say as I’m reading this so all i can do is cry. It’s sounds crazy but I have so much tears and love for your child and i’ve never met him. My heart is pouring out to you and your family and… just please know that you are in my prayers.Your a true meaning of keeping your faith.
I am praying with all my heart for your Ezra and you and your family.
Kyle and family,
My heart goes out to you and to precious Ezra, and I pray with so many others that God will hold you in His arms as you hold your sweet little boy in yours. Strength and peace to you in the days to come, remembering that His mercies are new every morning and great is His faithfulness!
With love and prayers, Kristen
Kyle,I’ve heard Ezra’s name mentioned in church by Pastor Craig, but had no real idea of the magnitude of what you and your family is going through, until I read through your postings. The love, the strength, the raw truth of your experience, all touched me deeply and brought tears to my eyes. My thoughts and prayers are with you and your family as you go through this difficult time. May God bring you comfort and peace.
I first read your story yesterday. I pray God will hold your family is His arms and give you His perfect peace. He can do all things. You and your family are precious to Him.
No words. There are no words to offer in this situation. I have a 9 month old and cannot imagine…my heart aches just trying. I have a best friend whose 3 year old son has Leukemia and I just watch from afar…never understanding. I just pray and pray and pray. May God be not just with you…but so thick and bringing so much peace there is no doubt He is with your family.
My thoughts are with your family.
We are here praying for you Ezra. God Bless.
Everyone gets touched by cancer, either directly or indirectly. You are our ambassador.
Be strong. Be fearless. You are amazing.
I came across your blog via my Facebook friend and you and your family are in my prayers. My heart aches for you and I will continue to pray for you.
We are right there with you- every friend, family member, friends of friends ( which would be me), complete strangers- have been impacted so deeply… Who are hurting so bad for your family. We all feel like we know your family, like we know Ezra. We all wish we could hug him, and kiss his adorable bald head; even though lots of us have never met him. I’m amazed by your strength, and can’t tell you how much reading your story has affected me. And has made me realize all over again why I need god in my life. Thank you for sharing you story and renewing my faith. Give that adorable little boy big hugs for us.
Matthews family, my prayers and love are with you. I know what you are going through having just gone through it with my husband. I pray God’s peace that transcends all understanding upon you are and I pray for a miracle for Ezra.
Blessings and love to you,
Kathy
I came to learn of Ezra’s journey through the Layla Grace Foundation.
I have read your blog, through tears. I know that I am not one to question all that is going on, but I will never, ever, understand the reason for the suffering these children are having to endure. My heart breaks, and aches for you, Matthews family. The strength you must possess, to have been chosen as Ezra, Price, and Charley’s parents. I CANNOT imagine, going through what your family has endured. Ezra is a beautiful child, and I’m sorry he is going through such such horrific pain and suffering. I pray that God will lay His healing hands on him, and heal him of this disease. I pray that Ezra will not have to endure any more suffering, and that you, as his parents, will be blessed with comfort and strength.
My thoughts and prayers are with you.
No words could be adequate, but I am praying for your family….
We are continuing to pray for your family…
My recently turned 5-year-old tonight was praying. And, as he often does, he prayed, “please God heal baby Ezra.” He was still 1 when we began praying for him and even though we don’t know him, he’s always been “baby Ezra” in this house. But then he said, “God please put your final touch on him.” That’s not something we’ve said or heard him say, so I asked him when he finished his prayer what he meant by it. He told me, “Mom, it’s like when you finish a painting and you put the final touch on it. It’s so that baby Ezra won’t be sick anymore and God can make him perfect.” I share that prayer with my son, for yours – and that the final touch would mean healing here and now. But I share tears with you knowing that the Almighty may ask you to accept for that completeness in His presence in His sovereign goodness. Our hearts are with you.
Alicia, that was beautiful. Your little one certainly has a heart for the Lord. Very encouraging. His prayer for Ezra was perfect!
I found your site through Facebook. I’m so sorry for all you’ve been forced to endure. I can’t even begin to imagine how you are feeling but please know you’ve got one more person praying for you and loving you and Ezra.
As I write this I have tears streaming down my face.I feel so saddened for your family and for baby Ezra. I want you all to know again what a gift it is that you are allowing us all to pray for you and your family and that you are taking the time to keep us up to date. Kyle,Robyn,Charlie,and sweet baby Ezra, know that the prayer from my family to yours is for peace and God’s arms wrapped tightly around you all. I am still praying for our Almight to bring forth a miracle. God bless
Praying for your family and hoping you feel comfort in knowing you are surrounded by love and prayers from many you do not know. While we do not know the plan, God does, and His plan is perfect and thank God we do have a God who loves us and knows what the plan is for every one of us in His kingdom at every moment.
I’ve been following your blog (through facebook, friends from GFC) and praying for your family, and little Ezra for quite some time. We are currently living in TN, but are from Tpa – we were part of the Grace Family since the beg.- and were there till 5 yrs ago. Our heart is still there, as well as some very close life long friends. I just want you to know we are praying for you, along with others here too…I pray the Lord surround you and just carry you…My heart aches for you, please know you will continue to be in our thoughts in prayers…praying for complete healing for your family – what a blessing that you were chosen to be his parents….he’s beautiful.
Endless prayers for your family…
I havent prayed on my knees in 16 years. That ended today. I prayed for God to bring you a miracle, whether it be a cure, the end to Ezra’s pain, or guidance for your family during this impossible time. I hope God sees fit to answer all three. My heart is broken for your family, and I can only wish you the best.
“Let hope rise & darkness tremble.”
I haven’t had the opportunity of meeting your son yet, but he has already changed my life. God is already moving through every situation, every circumstance. I love your family very much. Thank you for keeping us updated.
Praying for peace and strength for you and your family. I have reposted on my facebook page so I know there are many prayers for your family here in Jacksonville. May your strength of your faith carry you thru this difficult time. Your sharing your most intimate experiences thru this past year have been an inspiration to many. May God bless and keep you.
I just found your story today; I am broken hearted that I just learned of your family at such a wrenching time. I have a 2.5 yr old boy, and the courage, the strength and the openness you show to invite strangers into your heart amazes me. I pray that God is holding Ezra in His hands, and is comforting you all at this difficult time. If His plan is to let Ezra fly free, I wish him peace, no pain, no fear and that angels guide him home. Although we are strangers, I wish you all much love, peace and prayers. May angels gather around you.
Praying for little Ezra and the entire Matthews family. May God wrap all of you in his loving arms and never let you go.
I’m am aching through my whole being for you at this moment as I pray. It is so hard to stay strong and hold your faith true in times like this. I truely weep for you and I pray that Jesus gives you comfort beyond words in this time of need. In Jesus name Amen.
When we lost our little boy, Charis, it broke our hearts. But it was not until then, when I said goodbye to my son, that I began to grasp how gracious God was when He CHOSE to give up His only Son so that Charis and Ezra and the rest of us may have LIFE. Sympathy and Joy as Ezra wins the battle over Cancer, Sin, Death and this Sinful World. Well done good and faithful servants!
Very very well said! Amen to it all! God bless you!
My heart hurts for each of you. I pray for continued strength, peace, and comfort for each of you and for no pain or suffering for Ezra. May Father God intervene as only he can.
I pray for an overwhelming sense of God’s presence with you right now. Praying so much for all of you…
Praying for your beautiful family!
Hey Kyle and Robyn,
My heart goes out to Ezra and your family. I came across your story on Facebook and it really hit me hard. On September 9th 2010, we found out my 20 month young daughter, Madison Star Schafer had a brain tumor and has AT/RT, a VERY rare brain cancer. Only 30 kids under the age of 3 per year get this. I just want you to know that WE are in this fight together. My family is going through similar struggles and just want you to continue to be STRONG for your little man and wife. I will add you to my daily prayers for my baby!! Much love brother -Chris Schafer
Matthews Family,
Although I don’t know you personally, I am a parent myself and know that the love a parent has for a child is undying. Hold on to your faith now just as you are holding onto to Ezra. May God be your strength.
I am so very sorry for all that your family is going through.
Our 12 month old daughter was diagnosed with Neuroblastoma 3 months ago, and your story truly breaks my heart.
I will be keeping your family and Ezra in my thoughts for relief from this cancer. Such a sweet boy, and he should not have to be going through this. Cancer sucks, and is so unfair, and I hate that such innocent, sweet children have to suffer this way.
Please let me know if there is anything I can do for you all the way from Seattle and know that you have support from complete strangers.
Praying for you. I found this blog through a friend on facebook. I first saw your story on the COW site. I will be riding the Cure on Wheels — the 100k and will be thinking of and praying for your family. God Bless all of you.