Today is day 817 – our first Thanksgiving without Ezra. We are thankful for so many things. For 800 days of being given the incredible gift of caring for a beautiful and unforgettable son who has changed our lives forever, as well as many others. For God’s grace and hope which gives us strength to cry together and know that we will be ok. For Charley, another son with an incredible story whose smiles and laughs are already beginning to fill our home. For the hundreds (probably thousands) of pictures and video we all took of Ezra which remind us always of his smile, laugh, and personality. For the friends and family which these past few weeks have filled our life with their shoulders, arms, and love. We are thankful for family which will surround us today with smiles, cranberry sauce, and turkey with great stuffing. We are thankful for you – you who have been reading our story, commenting to us, emailing in, sharing your pains and joys as deep as ours with us. You who opened your heart to tell us how our past year has reminded you, instilled in you, challenged you, or changed you in some way.
Today is day 817, and we are thankful.
I wanted to also share with you about the status of our foundation. Things are moving very quick, and we are super excited. The foundation is called Because of Ezra. Above you can see our logo and a bit of our splash page. We are in the process of designing the website now and also doing all that legal mumbo jumbo that comes when setting up a new foundation – getting the tax-exempt status, writing by-laws, consulting with drs and legal folk about HOW best to assist in a goal of curing pediatric cancer… it’s all sorts of fun. 😉 I’ve been running around like a headless chicken working on how this foundation will work, look, and affect.
In all seriousness – Robyn and I feel strongly we can all affect pediatric cancer. Ezra’s story has opened our eyes to a world we barely knew existed outside of cute St Jude’s commercials and random charity letter mailing blasts that hit our mailbox. We have seen the battle in the sleepless puffy eyes of parents on the oncology floors. We have seen it in mothers sitting quietly watching their children sleep. We have seen them fiercely advocating for their children in pain. We have seen it in the stubbly faces of fathers traipsing to the family fridge in the PICU. We have seen these things in ourselves as well.
I know I’ve mentioned this before… I know I’m being a bit redundant. This is stuff that’s burned in us, though, and we know we can make a difference here, with a ton of help of course. Robyn and I know this is something which CAN be fixed. It takes time, awareness, and research. But families don’t have to go through this forever – a cure can be found.
From the Matthews Family,