“We really feel like Ezra started this fight and we’re going to continue it for him,” Matthews said. “The more families we meet, the more kids we meet on these trials … It’s not just a lab, it’s kids and families going through the exact same thing we went through.

“We don’t think it’s an incurable disease. We just think it hasn’t had enough attention. These kids can’t really speak up for themselves, so somebody had to do it for them.”

A huge thank you to Ernest Hooper for his article about Karaoke for the Kure (see you there!) and Because of Ezra in yesterday’s Tampa Bay Times. Read the full article at TampaBay.com.