in Because of Ezra

come run with us, and other updates

Thanks to our good friend Mandy we’ve now officially entered our first 5K run to benefit Because of Ezra (among others). If you live in the Tampa area, come out Saturday, February 26th for the Publix Gasparilla Distance Classic run. Most of us will be doing the 5k run – but if you’re not a runner don’t let that discourage you! They also have a 5k walk, and even a 5k stroller walk. They’ve also got longer runs if you’re one of those crazy runner folk. Since we’d love to get a ton of folk out there running to support Because of Ezra, anyone who donates more than $25 to Because of Ezra during the registration process will get a free tshirt to wear race day! We’d love to see lots of people running with BoE shirts.

When you register for the race (which costs $25) through this link, there will be an option to choose if you’d like to ALSO donate to a charity. Choose Because of Ezra, and if you give $25 or over, let us know your tshirt size and we’ll have one for you a few days before race day! You’ll need to either Facebook us or email us using the contact link on the right of or on Some have asked if it’s better to give directly to us than through the registration process – if you are actually planning on doing the race, then no, it doesn’t matter. The run doesn’t take any percentage out, so 100% of the charity donation you send to Because of Ezra comes to us. The $25 registration fee of course goes to the race.

In other updates… well, there’s so many. We’ve been busy little bees, trying to work as hard as we are resting. Charley is doing great, he has grown so much, and he is developing well. He’s a stubborn little boy with a hidden smile, but he shows it if you work for it. 🙂 Our nursing is most likely going to be cut back from 24 hours to 8-12 (daily) at the end of this month, and so Robyn will be working even more with him. We’ve been blessed to have had this coverage the last few months – they were rough times for us, and the nursing coverage was so appreciated. Things are still hard mentally and emotionally, but we are gathering ourselves together best we can. Life doesn’t seem to take any breaks.

Because of Ezra is shaping up very fast – we’ll be in LA in 2 weeks to meet with the folks of NANT, as well as some folks we’ve been emailing quite a bit who it looks like will be a big help in this adventure. We’re working on a lot of new content for the website ( – btw, are you our friend on Facebook? 😉 you totally should be…), and shaping up some very cool things for the rest of this year. Lawyers, doctors, and volunteers – oh my! We’ll try to update here as well as through the Because of Ezra Facebook page as we schedule more things – but it’s an exciting time. We will be effective at pushing awareness and funding into this cause. Did you know of the money the US government puts into cancer research, less than 3% goes to pediatric cancer research? ALL pediatric cancer? Drug companies don’t do much either, as pediatric cancer is much less profitable than adult cancer. Wow, huh?

That’s enough for now… there’s so much to share, but I’ll let you know more as we get everything more solidified. I miss Ezra every day, and we are committed to doing all we can to stop other families from having to feel this.

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  1. so many emotions…………excited, happy, utter sadness and joy! You continue to amaze me and I love you so much! My prayers have continued and will never cease 🙂

  2. Everything you are doing is positive! Continue to stay busy, in the end you will be VERY proud of Ezra! This all is keeping his soul living in each one of us as we miss him dearly also.

    I can see god is answering our prayers… we pray each and everyday for your family!

  3. You continue to be in my thoughts and prayers. Just a few days before Ezra died, another Christian friend of mine, Elliott, who lived in Scotland, died just 2 weeks before his 30th birthday. Elliott was a fighter just like Ezra was.

    Elliott knew about Ezra and he told me often that he prayed for him every night. I like to keep a picture in my mind of Elliott meeting Ezra as he arrived in Heaven and taking him by the hand and giving him a tour of everything. Ell loved to play rugby and to fish so I am thinking of Ell teaching Ezra how to play rugby and taking him fishing. I wish that I had the gift of being able to draw as I would love to draw a picture of the two of them together holding hands.

    I hope that I haven’t shared that story with you before and have now just repeated myself. I thought you might like to know that Ezra had a ‘friend’ who had been praying for him for months up in Heaven and that they are now together with Jesus.

    I’m so glad to hear that Charley is doing well.

    Much love and prayers and hugs are being sent your way.

    Heather Oliver
    Windsor, ON

  4. Great happenings! I am so glad to hear of it all… I want to organize a fundraiser up here in Bucks Co PA for the spring (could you maybe share a hint about who to go to for a race?) I miss aeeing updated pics of Charley and you guys… Hope you share some of those too…

    Gena and the 3 Cs!

  5. Wow, you both are amazing! I can’t wait to sign up and run with everyone wearing my shirt! I think of you guys often and my prayers are with you! So happy to hear about Charley and the wonderful things going on. Much love!

  6. I forgot to mention that it sickens me that less than 3% goes to pediatric. Who would have known!! I’m thankful that you told us that tidbit. It’s depressing and sad, but makes us all want to fight harder I’m sure. What a difference some money and attention will make! God Bless you both 🙂

  7. I keep Ezras picture at home on our fridge. I never want to forget he played such a huge role in our life spiritually ,,i never want that fire to burn out,, im excitted for the run we will have here in washington in May and all of the awareness it will bring. Im so thankful charley is well!! love and still praying for you guys.

  8. Hi. I haven’t been following the stories, I just stumbled across the website when i was looking for some articles on fasting. Well, I am sorry for all of those who have lost someone, and i pray for all of you who are holding on for someone.

    Well, since i am here, i have a prayer request. My great aunt Ermenta) has just been diagnosed with cancer, and i am asking that you please prayer for her total and divine healing. Please pray for her family as well. I am going to be fasting about this as well as some health and mind issues that have been botherinn me for way toooooo long.

    thanking you in advance for your prayers.God Bless you!!!


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